Friday, November 27, 2009

Update on Ryen

So Sara posted this regarding baby Ryen and the lump you've all been praying about. It would appear there is good news, but not perfect:

So right off the bat - it's not cancer. There were no signs of malignancy. Relief. However, it is something, not just an infection. The pathology report indicates sarcoidosis but my doctor has never seen it before in a baby, never presenting itself in a single node in the neck so she is reluctant to diagnose it. So we continue to wait. We are going to see the pediatrician in two weeks and hopefully he'll have more answers for us.

Sarcoidosis is an autoimmune disease, I think. It manifests itself in a lot of different ways. It is a mostly benign but lifelong condition. It may require treatment if he has symptoms but most people with this disease are asymptomatic. It's not too scary yet but I don't know. The internet has lots of information but it covers the whole spectrum so it's impossible to know how this will impact Ryen, if this is what he has or is diagnosed with. My doctor said with only one node he may not have the disease, just one node with sarcoid cells.

Back to waiting and not knowing. It's not cancer. But it is something.

He's healing well and the gauze came off today. Now we wait for the surgistrip to come off and we'll be able to see his scar.

2 comments:

Dana said...

So happy to hear it's not cancer! But so tough to know that it is something, and they have to wait to find out what. Will pray for their patience and peace, and an accurate diagnosis that he is totally fine!

tamie said...

It just goes on and on for this family, doesn't it? I'm glad, too, that it's not cancer. I hope they can be at peace, at least in some measure, while they wait.